Thank you to everyone who has filled out our survey   which has now closed. Your responses letting us know what you would like future thyroid research to address will help shape the future thyroid research agenda.

We will be inviting the thyroid community to be involved in drawing up a shortlist of research priorities, based on your  survey responses, in the auturmn. If you have any questions in the meantime, please contact us [email protected]

This survey was part of our James Lind Alliance Priority Partnership on Thyroid Disease. You can read below more about who we invited to take part in the survey.

Who can take part in our survey?

You can take part in this survey if you are aged 16+ years, based in the UK and one or more of the following apply to you: 

• You have been diagnosed with a thyroid condition by a healthcare professional at any time
• You are a parent, carer or family member of anyone diagnosed with a thyroid condition by a healthcare professional at any time
• You are a healthcare professional who looks after people with thyroid conditions

How long does it take to complete the survey?

The survey will take about five to thirty minutes to complete, depending on how much you want to contribute. Every opinion matters and every response counts equally.

What isn’t included in our survey?

This survey does not cover active treatments for thyroid cancer. Including this would require specialist expertise and resources that unfortunately this project does not have. Our steering group also recognises that thyroid cancer is an area of substantial ongoing research, so this project is focused on areas where there is greater uncertainty.

Can I respond in a different way?

If you would like a paper and/or large print copy, or need assistance with answering this survey, please contact: [email protected]  or 01423 810093

How long was the survey open for?

The survey opened on 11 May 2026 and  closed on 22 June 2026

What happens after completing the survey?

• We will look at all the responses we receive and group them into themes
• We will check existing research to see which questions have already been answered
• We will make a list of unanswered questions and work with the community to put them into priority order
• We will publish and promote the top 10 agreed priorities for future research to address

How will we hold your information?

By taking part in our survey you are agreeing to allow us to publish your responses anonymously and use them in the next stages of this project and other work that may benefit thyroid patients. Any information you choose to share with us will be kept safe and confidential and used in compliance with UK data protection regulations. 

If you choose to stay in touch with us to hear about the next stage of the project, we will ask for your details after completing the survey.

If you change your mind and want us to remove your personal details from our database, you can get in touch at: [email protected] or 01423 810093

For further information go to BTF privacy policy.

Want to hear more?

If you would like to hear about the survey results and how to get involved in the next phase of the project, please opt in to share your contact details when you complete the survey. Alternatively email us with this request at [email protected]