“Living with hypothyroidism affected my confidence, my mood and my whole life.”

Kandeel suffered from a wide-range of symptoms before she was diagnosed with autoimmune hypothyroidism (Hashimoto’s disease). Once diagnosed, many of these symptoms unfortunately continued.

It was only after finally reaching her correct dose to balance her thyroid levels that she finally improved.

 

Which condition have you been diagnosed with?

I was diagnosed with autoimmune hypothyroidism (Hashimoto’s disease) at the age of eight. I’m now 28, and this condition has been part of my life for as long as I can remember. It has shaped my health, my mindset and my professional journey as a neuro-oncology research nurse.

“My self-esteem was low, and my confidence took a real knock when I often struggled to recognise myself in the mirror.”

What symptoms did it cause?

My symptoms were wide-ranging and, at times, very distressing. I experienced extreme fatigue, low metabolism, alopecia, weight gain, facial puffiness, swelling of the glands, and insomnia. I also suffered from very irregular menstrual cycles and heavy bleeding, which led to low iron levels, leaving me constantly tired and mentally foggy. My self-esteem was low, and my confidence took a real knock when I often struggled to recognise myself in the mirror.

Were they picked up on?

Not at first. Because many of my symptoms overlapped with other conditions or were dismissed as puberty or stress-related, it took a while before anyone suspected a thyroid problem. It was only after my symptoms persisted and worsened that I began having more detailed investigations.

How did you eventually get diagnosed?

After lots of appointments and persistent symptoms, I was finally referred for further testing. Blood tests confirmed Hashimoto’s thyroiditis with very out-of-range TSH and T4 levels. Over the years, I’ve been reviewed by several endocrinologists, including reproductive endocrinologists and gynaecologists since my thyroid issues were closely linked to my menstrual health.

What treatment were you given?

I was prescribed levothyroxine, which I will need to take for the rest of my life. Finding the correct dosage took time, patience and regular monitoring. It was a gradual process of trial and adjustment, but once my levels stabilised, the difference was life-changing! My facial puffiness reduced, my energy levels improved, my menstrual cycles became regular, and my sleep finally normalised.

How are you feeling now?

I’m in a much better place both physically and mentally. My thyroid levels are well controlled, and my symptoms have improved dramatically. Through consistent lifestyle changes, I have lost over 20 kilograms, my iron levels have normalised, and I feel more confident and active than ever. My metabolism is stable, my mood is balanced, and I finally feel in control of my health. 

What have been the most difficult parts of your journey so far?

The hardest part has been the mental and emotional toll. Living with hypothyroidism affected my confidence, mood and my whole life. The fatigue and hormonal fluctuations made it difficult to function normally, and there were times when I felt completely defeated.

The past two years were extremely draining with personal challenges, which were worsened by my thyroid instability. It was one of the most painful periods of my life. However, stepping away from that environment allowed me to begin truly healing - both mentally and physically. That experience gave me resilience and reminded me of my own strength.

Balancing my condition while pursuing a demanding career as a research nurse was also tough, but it has made me more empathetic and understanding toward patients living with long-term conditions.

Was it difficult for others to understand what you were going through?

Yes, absolutely. Hypothyroidism is an “invisible illness,” and from the outside, people often assumed I was fine. Many didn’t realise the constant exhaustion, brain fog, and emotional strain I was facing. It took time and open conversations for others to understand how deeply it affected me.

Did you manage to find some support?

Yes - I was very lucky to have a strong support system. My mum was my biggest source of strength. She was with me through every appointment, encouraged me to keep going and reminded me that small improvements mattered.

My best friend is also my ‘human diary’, standing by me through every high and low, always listening and offering unconditional support. In addition, my colleagues and work family were incredible - they supported me through my health complications and were understanding during the periods when I had to take significant time off work due to my thyroid condition. Their compassion and flexibility allowed me the space I needed to recover without guilt or pressure.

Now that I’m back at work, I’m doing what I love most - helping patients and contributing to research aimed at finding a cure for glioblastoma, one of the deadliest cancers there is. Being back in my element, surrounded by patients and purpose, has reignited my happiness and given me a renewed sense of drive and gratitude.

What would you say to anyone on their own thyroid journey?

Please don’t lose hope! Living with hypothyroidism can be incredibly challenging, but things DO get better once your thyroid levels are under control. Be patient with yourself and give your body the time it needs to heal.

Surround yourself with supportive people, and don’t be afraid to speak openly about your condition. Learn as much as you can, trust your healthcare team, and celebrate every small victory along the way. You are not alone - and with the right care, support, and persistence, it is absolutely possible to regain balance, rebuild confidence, and feel well again.

Further information

Read our hypothyroidism resources 

Read our 'Living better with hypothyroidism' article